Upside of Down Blog
Friday, February 24 2012
In light of the recent news of the funding reduction from NIH (National Institute for Health) for Down syndrome research, WE, as parents and families, have got to STEP UP and help to support to continue Down syndrome research! Clinical trials are under way by ROCHE based upon research by DSRTF (Down Syndrome Research and Treatment Foundation), but without funding, scientists cannot continue their efforts, which could even result in no more clinical trials.
If you're thinking, I can't do that, there's an organization for that.....you're misled! Organizations out there need private funding from us! YOU can do it, and WE can do it together! Here are some ideas that you can use to help you help EVERYONE in the Down syndrome community! With the money you raise, you can donate it directly to DSRTF or if want our help, you can leverage any communications/events that Upside of Down puts on to raise funds.
If you aren't sure if you'd even consider giving your child any medications that MAY end up proving to increase cognitivie ability (like me), THAT'S OK. I look at this that it will provide more opportunities for people with Down syndrome that aren't currently there and could prevent the early onset of Alzheimers, which research shows people with Down syndrome are very likely to get. I couldn't be happy just sitting back and possibly letting research fall to the way side - who knows what will be discovered!!!
Please let us know if you'd like to chat about other ways we might be able to make a difference!!!